Stories of children diagnosed with life-limiting conditions and stories of pregnancy and child loss.

Whether earth side or in the stars, these stories share a theme. Of a love beyond all other, of kindness and - despite it all - of hope. If you find yourself here because you too are experiencing a child’s life limiting diagnosis or a great loss, we hope these stories help you to feel less alone. This is a place to rest your weary heart, linger for a while - among those who know what it really feels like.

A word of warning, these stories may be distressing, and we encourage you to seek support if needed click here for more.

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This is the story of James and Poppy

This is the story of James and Poppy. Written by their mother who had HELLP Syndrome during her pregnancy, a severe and life-threatening form of preeclampsia.

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Charlotte and Greer

Charlotte is the mother of twins Greer and Tavish. In this honest and raw blog post, Charlotte shares the reality of parenting twins where one has a life-limiting condition. Charlotte shares that sometimes it is ok to not be ok.

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Roni’s story

Roni was born at 24 weeks and lived for just 9 days before her parents had to say goodbye. This is her mother’s story of learning to live with loss and choosing love after loss.

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Lessons from Lucy

Lucy was diagnosed with Miller Dieker Syndrome, just like Lily Calvert. Lucy’s mother started a blog called ‘Lessons from Lucy’, which MTM founder, Priyanka Saha discovered in the early days of Lily’s diagnosis. Lucy’s story became a guiding beacon for Priyanka and Lily’s family and it is our honour to share her story on The MTM.

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Everett’s Story

Kirsty shares the story of the birth of her son Everett who died after an emergency c section. Kirsty gives us insights into how she survived after loss and how she learnt to find hope and smile again after Everett’s death.

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Louis’ Story

Louis was born on 4th April 2018, after a healthy pregnancy. Louis’ parents had no idea anything was wrong until one day he stopped breathing. Then began a journey that changed their lives forever.

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Bodhi’s Story

Alysha lives on the beautiful Gold Coast with her fiancé Trent and darling 15 month old son Bodhi who has a life limiting condition. She shares Bodhi’s story and the journey they have been getting a diagnosis and learning to live with new expectations for Bodhi’s life.

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Noah’s Story

Amy Trojer is Noah, Hudson and Leo’s Mother. She is a nurse and she shares her story of loving Noah who lived for just 12 days.

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Maeve’s Story

Maeve was Kirsten’s first born. On the day she was born her parents were told she had an incurable brain disease. Maeve was a bringer of light and love in her 444 days on earth.

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Billie’s Story

Billie’s mother shares her story of beautiful Billie who died from Enterovirus only 11 days after birth.

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Harper’s Story

Kimberley shares the story of her daughter Harper who was born with an unknown life limiting illness. Harper is now 20 months old and she has had a big impact on everyone she has met.

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Keira’s story

Kiera was born on 4 May 2020 after an uneventful textbook pregnancy. Kiera’s mother and father never could have imagined that she would not make it through her first night.

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Felix’s story

When Felix was born everything was ‘normal’ until a rude encounter with the community child health nurse set Clare and her husband Mark on a path of medical investigation to a diagnosis that no one expected.

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Ivy’s story

What do you do when you have your beautiful, long awaited baby daughter; and then she dies at only six days old? Katie never imagined she and her husband Stew would have to answer that question.

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Eva’s Story

Eva’s mother says ‘I never knew how dark the world could appear on a bright summer day until the moment we received Eva’s terminal diagnosis.’

Eva was born with Miller Dieker Syndrome and lived for 22 days.

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Eve’s Story

Felicity is Eve’s mother, Eve was born without breath during the height of the COVID19 pandemic. Felicity shares her experience of losing a baby and the heart ache of grieving alone in global pandemic. She shares advice for pregnancy after loss and learning to hope again.

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